44 health, the constant need to nurse the child (24/7), and all the extra responsibilities. In addition, they are confronted with social, emotional and financial consequences. At the same time, parents are not always aware of the wealth of (child-rearing) knowledge which they gather through first-hand experience and of the possibility of helping each other by sharing this knowledge. It is essential to ensure that parents and children retain and strengthen their control over their own situation, and that health professionals provide them with the necessary support to achieve this. Substantial gains can be made by building more knowledge and improving access to that knowledge. Our knowledge of what nutritional care (as a therapeutic intervention) entails for children with a chronic illness is still too general, and we still have insufficient knowledge as to how we can increase the effectiveness of that nutritional care . We must seek smarter ways of combining the knowledge and skills that is available among parents, in the healthcare environment and at school. Government, research scientists and businesses can play a secondary role in this process. Multiple sources of knowledge must be opened up and linked to create a permanent circulation of knowledge (figure 1). By organizing this effectively, we can achieve savings of at least € 600 per pupil on an annual basis (Berden and Kok, 2010). The big question is: how can it be effectively organized? Schools for chronically ill children can play a pivotal role in improving our knowledge of effective nutritional care for all pupils with a chronic illness; i.e. also for children who attend mainstream schools. Because LZK schools have lots of knowledge about nutrition and special diets for this specific group of children. The problem is that this knowledge is not used in a wider context. Two LZK schools in the province of Noord-Holland – one in Amsterdam and one in Haarlem – are at the heart of the Knowledge Kitchen. They have embraced the ambition to grow into centres of nutritional expertise. Objectives The ‘Knowledge Kitchen: Effective nutritional care for children with a chronic illness’ aims to achieve permanent knowledge circulation and interaction between parents, healthcare and education, but also with researchers, the (food) industry and other parties. It is a civil society enterprise aimed at: • systematizing and unlocking (nutritional) knowledge and experiences of school staff, (para)medics, parents and children. • developing a range of products and services that cater to the special educational needs of chronically ill children in mainstream education. • improving the nutritional condition, learning results, self-reliance and quality of life of chronically ill children. • encouraging cooperation between parents, schools and (para) medics to promote effective nutritional care. Pagina 49
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